Saving lives with a modern health system

In the event of an emergency, or if you need to see healthcare providers across different systems, your doctor should have all the information they need to give you the best care possible—but that doesn’t always happen.

It’s time to change that.

Creating a statewide Health Information Exchange network will allow doctors, nurses, pharmacists, and other health care providers to immediately access a patient’s vital medical information electronically—a critical tool to improve community health and to respond to public health crises such as the one we face now.

Our multi-stakeholder coalition was created to deliver on the promise of connected health data across California—because we believe that the time is now to reinvent our system and deliver high-quality care for every Californian. True health equity and a system-wide transformation are our ultimate goals—and we’ll get there by putting patient, provider, and caregiver stories first.

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What patients and healthcare providers are saying

California voices: How would a health information exchange network impact you?

“Even though I am young and may look healthy, I have a serious preexisting condition—for which I have had to manage all my own complicated medical records. If I have a medical emergency and am unconscious, no one would know about my complicated history or how to get me back to health. All of this simply can’t be put on the patient.”

Anna R.
Patient Advocate

“Our doctors have to make split-second decisions for patients every day—and sometimes lives hang in the balance. Investing in an HIE will mean providers know critical information about allergies, pre existing conditions, and medications. It will save lives. Guaranteed.”

Dolores G.
Riverside County Medical Association

“Currently, providing care can be especially difficult in cases where there is a John Doe or unconscious person with only a driver’s license for reference. If data was available faster, it would streamline the process of trauma care and allow us to provide care faster.”

Eric R.
EMT

“I had a patient who I saw last year who said ‘I had a stroke’. In my mind there are certain things I think the patient is going to need after having a stroke—I requested the records three or four different times and did not get them and waiting for those things meant three or four months that the patient wasn’t able to get those services. I still follow the patient and he still has limitations that I’m not convinced he would have had otherwise.”

Hakeem A.
Medical Director, Sacramento Native American Health Center

Do you have a story to tell about running into barriers to high-quality care?

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The Latest from Twitter

ICYMI: Mark Elson published a new report about #HIE in CA, and the role local investment and collaboration play. As Mark said when he visited our coalition meeting, "Localities are where the collaboration happens to overcome barriers in HIE."

http://bit.ly/3A8rZmV

It has been a long road toward health data exchange in CA. This report from @CHCFNews highlights the key decision points along the way, and how we can continue moving towards improved health data infrastructure in California.

https://bit.ly/3hwkNd0

We were thrilled to see the first meeting of the Data Exchange Framework Stakeholder Advisory Group on August 31! Read our blog post on this historic meeting here: https://connectingforbetterhealth.com/updates/first-stakeholder-advisory-group-meeting/

Work to create interoperable public health data systems are underway via @CDCgov’s Data Modernization Initiative. Prior to the pandemic, 1/2 of all hospitals reported challenges related to their or public health agencies’ lack of capacity to exchange data. https://www.healthit.gov/data/data-briefs/challenges-public-health-reporting-experienced-non-federal-acute-care-hospitals

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